Wednesday, December 30, 2009

Blog, Pics, Posts...

I want to reach out to everyone who has been so wonderful and supportive (whether it be in errands, calls, emails, postings, prayers, or simply adding yourself to this site or the Facebook page).

Brandon and I appreciate everything from the bottom of our hearts and we thank you more than you will ever realize!

It is important for you to know that every day Brandon asks me to read him my blog, responses and emails we have received. He has said "it soothes me". So know your messages and words have power beyond the medicine he is receiving here at Princess Margaret.

Also - a word about the pics. They have caused quite a stir - but the intention was not to shock or look for pity or sympathy. It was a way to "show" what this disease can do; what it has done to my love, so that people could see how quickly it takes over and can destroy (but not defeat).

Once again - thanks to everyone, and please keep those messages coming.

Taly and Brandon

Day 14 numbers (Dec 30)

Hgb - 82
Platelets - 9 - transfusion today
WBC - 0.3

Having a very tough day today. Nauseous (vomiting) and exhausted.
His hands are literally peeling off - the nurse cut off a layer of skin today.

We brought Dana in for daddy's "hair cut". She loved it! She was smiling the entire time and at the end of it she says " I made up a song. You are so handsome...."
What an amazing girl she is!
And I do agree with her - his beautiful features stand out much more and he is quite handsome with a buzz cut.

We did get some great news today - yesterday they extracted some spinal fluid from Brandon's back and the results came back negative for leukemic cells. Finally a break!

We are hoping that he starts to feel better in the next few days but this has really knocked him out...Dr. says that he really is getting many of the tougher side effects.

Hoping this is the worst that the wicked witch has to throw at my prince and from now on he will start kicking her butt!