Sunday, January 17, 2010

A few days at home...

What a wonderful, awesome, dream-like wish come true to have Brandon home these past few days!

I have not written a blog - for good reason - life has been busy....with life.
Cooking, grocery shopping, playing with the kids, work, errands, cleaning up poop....
The day to day tasks that had been taken away from us so abruptly.

It's been so great having Brandon here with me, in the same room, on the same couch, in the same bed.

But I will be honest - it has also been hard. Hard because as much as we try to be 'normal', things are far from normal...
  • On Friday Brandon was nauseous all day. So we debated whether or not to go to the hospital. What does this mean? Is he just tired? Did he eat too much? Is he getting sick? Is the cancer back? So we spent the day worrying. And I spent all night watching and listening to him sleep...just to make sure.
  • Even during happy moments - Brandon will look at Koby and/or Dana and start to tear up, because there is always that fear...that thought..."I just want to see them grow up".
  • And then there is the truth that continues to loom over us all the time - there are still 2 rounds of chemo (at least)- as good as Brandon is feeling, we now know how badly he reacts to the treatment.

Brandon has been great - not surprising because he has been the greatest since the day I met him. He tries (and does) help out as much as he can, wakes up with Koby, takes Dana to school, and really focuses on making me happy (as always).

He is fighting - fighting hard! But the other truth has been introduced --- as much as he fights, as well as he does, it is all for not unless we find a transplant donor. The cancer WILL come back, within the year, and then remission will be much harder to achieve. We have started the search and now we pray that someone out there will be a match.

It is great to have Brandon home - and we are focusing on that. My friend Pamela bought me a bracelet last week engraved with some very special (and perfect) words - "Cherish the small miracles" - and that is what we are doing. Daily. Together.

8 comments:

  1. Taly and Brandon,

    There is nothing better in life than simply enjoying all the moments that you have both experienced all week. What a fabulous week it must have been. Brandon- you are headed down your path to recovery- lots of bumps in that path but always remember what's at the end of your path.....
    A match for you will be found. Soon.
    Hang in there guys.
    Thinking of you all the time.
    MARCI

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  2. Wow! Taly I have not seen you since highschool, and I just came across your blog through Facebook. My prayers and positive vibes are being sent your way. I feel for you all. Your husband seems to have a great attitude, which is more than half the battle. Reading your story, really touches home for me. I will send you that story on a private message. I wanted to let you know that my brother is an oncologist, so if there is anything that you need, please do not hesitate to contact me. I will be keeping posting of your journey to a life without Cancer. All the best. Big Hugs.

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  3. I am thrilled you've been given a moment of happiness during this nightmare. We think of you every day.
    I have started the process of becoming a bone marrow donor. I spoke with a rep from Cdn Blood Services today - I told her your story, and how it's because of Brandon that I am on board. She encouraged me to give you her direct number should you have any questions about being on the receiving end of a donation. Her name is Mary Lynn Pride and her number is 416 313 4504. I hope I'm a match for Brandon, or failing him, someone like him. Kind, funny, compassionate, and loved. Thinking of you, Angie (and Lee and Cooper)

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  4. Dear Tali and Brondon,just cherish every moment.Your love will destroy all obstacles.
    I think every day about you.
    lv
    Rachel and Ady Stetter

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  5. dear taly and brandon,
    the time now is very hard for all of us and especialy for you two.
    your love for each other together with the wonderful kids will overcome all the bumps along the way.
    please think positive a donor will be found.
    everyone is praying for you

    love you with all my heart
    ima

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  6. i just learned of your illness today and i'm nothing shy of stunned. angela and i are so broken for you, taly and family. can not imagine...
    we are definitely praying that God will heal your body, renew your spirit and encourage your soul.
    you have a spirit that is much stronger than any disease and an army of people praying and believing.
    much love,
    maz

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  7. Our thoughts and prayers are with you at this time. We have been regularly following you blog on a daily basis. We hope that Princess Taly and Prince Brandon enter an Eternal Fairyland soon!!!!

    We know that your road seems like it's all uphill . . . .but with your medical team, G-d's help, and lots of patience . . .Brandon will get well . . . .and the view from the top will be breathtaking!

    Regards to your Mom, Taly.

    Warmly,

    Riva and Carl Gelber

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  8. I am so happy Brandon is home and you guys are back doing to little everyday things, so awesome and so important to our spirits I think.

    Give each other a hug for me. Miss you lot's from way out here in Germany. I am back in May, line up that golf game...

    Take good care,

    Bill

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