Monday, May 31, 2010

Running for a Cure

Last year Brandon ran his first marathon. We later discovered that he had Leukemia during the race. I was overly impressed with him then ... this year is beyond all odds and expectations!!

This year we are BOTH running to raise money for the Leukemia and Lymphoma Society of Canada (participating in the Nike Women's 1/2 marathon).

This is our small way of giving back for all the miracles that we have received through Brandon's medical treatment and hopefully we can help others that are afflicted with this horrible nightmare.

If you would like to support us with a donation, please use the link below:

http://my.e2rm.com/personalPage.aspx?SID=2623797

Thank you in advance for your support in this initiative!!

Tuesday, May 18, 2010

A Bit of a Roller Coaster

Unfortunately, as the Dr's warned us before the transplant, Brandon has hit a bump in the ride. His new immune system has grafted well...so well though that it is now attacking his body and he has a bad case of graft vs host disease (GVHD). And although the Dr's do want to see a bit of this, Brandon's was getting too harsh.

Brandon has GVHD on his skin. As a result he literally looks like a burn victim. His skin is a deep red and has peeled completely on his face (after flaking for about a week). His feet blistered completely - to the point where he could not even walk, and his eyes swelled so much that he could not close them. He could not blink, and there was one point where he fell asleep on the couch with his eyes open - CREEPY!! It is quite painful and even hurts when he tries to apply his medication.

On Friday he had his regular checkup and the Dr's decided that they have to take action. Taking action means that Brandon has to start on a new medication and double the steroids that he is on. This does not seem like a big deal but the danger is very real...the medication increases his chances of coming out of remission (in yrs to come). Brandon of course asked if there was anything else that could be done, but unfortunately not.

So on Friday Brandon started the new meds. Today he is feeling (and looking) better. The Dr's saw him again today and are happier with his condition.

So the coaster continues...

In truth, as much as the Dr's warn you about these things in advance, I was convinced that Brandon would just be getting better each day and that he would soon be back to normal. I am starting to realize that the road ahead may be a lot longer than the road behind. And that sucks!

Tuesday, May 11, 2010

Looking Back at the Past

This weekend we watched our wedding video - something we hadn't done in a few years. What a blast to the past! Several things struck me (hard) as I watched the 2 of us from July 2005...

First of all - What an absolutely AMAZING day!!! We had such a great time and watching it brought back all those great memories.

Second - If I tried, could I still fit in that dress? LOL

Third - Look how far we have come in 5 years. We now watch this video with our 2 healthy, happy kids...who were sitting mesmerized with smiles on their faces as they watched their mom and dad's royal wedding (Dana asked me where the carriage was).

Fourth - Look how much shit we have lived through in only 5 years - my sickness and 2 month hospital stay, Koby's danger at birth and 1 month hospital stay and now Brandon's cancer! More than a couple should have in a lifetime!!

Fifth - Brandon - how healthy he looked...and how ready I am for him to feel (and eventually look) that way again.

And finally - As we listened to the speeches, I turned to Brandon and told him (in all honesty) that I could stand up today with the exact same speech and mean every single word with all my heart - all the excitement, happiness and love I felt for him at that time have only grown stronger...and I am just as honoured today to be his wife!

Tuesday, May 4, 2010

Great Milestone Today!

Brandon had his regular check-up at the clinic and they are so happy with his progress that they cancelled Friday's check up!

YAYYYYYY!!!!!!!!