Arghhh! That pretty much describes how we are feeling in the most polite fashion. If I were less polite there are a few choice words I can think of.
Brandon is back in the hospital again.
[Warning - graphic post]
Last Tuesday Brandon started feeling discomfort when he urinated. He mentioned this at his regular appointment. They took a culture and sent him home.
By Thursday he was peeing blood and was in excruciating pain. On Friday he took himself to the hospital (without an appt) and insisted that they do something (anything) to relieve some of the pain. They gave him some antibiotics and arranged for a nurse to come to our house over the weekend to hook up Saline - to flush out what they believed was a virus.
Throughout the weekend Brandon was in HORRIBLE pain - literally moaning and hunching over every time he went to pee - which by now was every 15 minutes!! He was exhausted but could not stay asleep because he always needed to pee. TORTURE!
On Monday Brandon had another appointment. Nothing new. Monday night was spent in the bathroom (too graphic).
Tuesday he went back to the hospital for his appointment. They assessed him and decided that he would not be going home. They hooked him up to an IV and started the Saline flow. He was finally given some Morphine which at least dulled the pain.
Their diagnosis was that indeed he had a virus in his bladder - something that we could all get but we could fight. As Brandon's immune system is suppressed, it turned into something painful. The result is frequent urination, inflammation, bleeding and pain. That would have to go away on its own as there is nothing to do about a virus. They are also concerned about GVH (Graft vs Host) of the gut and wanted to control this right away. This is quite serious and if it gets out of hand it can last for months and be quite uncomfortable and painful - basically everything goes through you and out - you can't digest anything properly.
So now they are talking about keeping him in hospital at least until Tuesday. They are observing him to make sure he is in fact over the risk of GVH.
It is such a roller coaster. A very frustrating, painful, and random roller coaster that we want to get off of.
I feel so horrible for Brandon. He has been through so much and it does not seem to end. One thing after another. And I feel so helpless as he is in pain and there is nothing I can do. And I hate it! I just want him to be ok already!!