Thursday, September 30, 2010

A Tough Day (with pics)

We arrived at the hospital this morning and went to see Brandon with his doctors (not the kids). They asked him to stick out his tongue...no response....no comprehension of what they wanted, just a bland stare back at the Dr. Then the Dr stuck out his tongue and Brandon could copy him. They asked him to move his right leg - no movement. Move his left leg - nothing. He could not speak, and when he did he just repeated the same word over and over. I had to leave the room.
Then we met with the Drs - no change - still has liver and kidney issues, not sure what is going on with his brain but suspect the virus is still there. Brandon's brother asked the tough questions - we heard the tough answers. FUCK! Timeline? No idea. FUCK!

Now it was time to take in the kids (who were waiting downstairs with my parents). Brandon's amazing nurse Liann got them special robes, blew up the rubber gloves like balloons (and colored them like bunny rabbits), and gave Dana a pink stethoscope (huge hit). So now, dressed as "doctors", they were ready to go see daddy.

Wow - what a beautiful scene - Brandon gave a huge smile when he saw them. We put the kids on the bed - Koby jumped straight into his arms and would not let go. Dana, a bit more timid, laid back but slowly cuddled up to daddy and touched his new soft hair. And Brandon hugged them, and kissed them, and squeezed them. And though he could not talk, his eyes glowed with love.

And I was smiling.
And I was miserable...heartbroken.
The thought creeps in - could these be the last moments? Are these the last pictures?

If g-d was watching he would know that Brandon belongs with us and needs to get back home to the kids. They need him and I need him. We are meant to be together as a family!

The rest of the day was tough. Brandon was not responsive and could not really speak, It's also tough to tell if he hears you because the eyes just stare ahead, no sign of comprehension. And there are moments when he gets so agitated and he tries to get out of the bed...which he can't.

At the end of the day he sat up and I helped him. He leaned towards me, put his arm around my shoulder and gave me a couple of sweet kisses. He looked at me and smiled. And I smiled back and told him I love him so much.

This fairytale story needs a happy ending. It's time for the good witch to appear and save the day. And allow the prince to return home.

PLEASE PLEASE PLEASE!!!!!!!!!!!!!!!
It needs to happen, it just has to!






12 comments:

  1. I've been thinking about you all day today. I'm so glad Brandon felt so much joy seeing the kids, and that they got to spend time with their daddy. I'm so glad to hear that he got to show you how much he loves you, even though he can't tell you right now. I continue to pray for you all and hope for a turnaround that will bring Brandon home to you.

    Sending love...

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  2. So glad to hear that Brandon got to see and hold Dana and Toby. We are all thinking of you.

    Razia

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  3. Taly,
    I wish you and Brandon the happily ever after you so deserve! Again thank you for your blogs. Many Blessing to you and Brandon and all of your families...and the pictures...there are no words.. the pictures speak for themselves.
    tammy

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  4. Your pictures are painfully tender and beautiful, Taly, we pray for miracles.

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  5. My prayers are with you. I worked with Brandon,albeit briefly and he made a lasting impression. He's a caring, honest and all around solid person with integrity and I hope and pray he recovers and can be with his family at home once again.

    Eleni

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  6. And tonite....Brandon ate a popsicle...and tonite Brandon squeezed mine and Justin's hand when we asked him too....and wiggled his toes...and asked to be sat up(he loves my massages). Maybe, maybe,maybe.
    Mom

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  7. Hi
    Thank you for posting. I have been wondering all day how the visit with the children went. I can't imagine recounting the day let alone living it. Thank you for being so brave that you can post the truth.

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  8. If anyone can pull out of this it is Brandon! Stay strong Tal. He loves you and the kids with everything he's got and will do everything he can to come back to you. That smile while holding Koby says so much. My love to each of you.
    Jen

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  9. Tali,

    Your generosity of spirit and love carried you through this day.

    Life is a series of moments, fleeting and full of meaning, if we allow that meaning to enter our lives.

    You have filled us with meaning today and we are all grateful to you.

    You shine with your love and that will carry you through tomorrow and the next day too.

    We are all hoping and praying with you.

    Many hugs,

    Phil Dani Zavi and Joelle

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  10. I'm glad to see him smile. Thank you for updating us. I said a novena to st. Jude-the saint to turn to in desperate times-praying for his recovery.

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  11. What an amazing and touching moment.. He may not be able to speak but he hears you... he hears you.. he feels your love even without your touch.. and the joy in his eyes and smile say it all... sometimes no words need to be said.
    - Netaly

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