Friday, January 1, 2010

Sleeping Beauty

Aurora (aka Briar Rose aka Sleeping Beauty) is one of Dana's favorite Princess stories. We probably have 6 different versions of the story at home.

In the story, the witch puts Aurora in a trance so that she pricks her finger on a spindle. She then falls into a deep sleep, and so do all the others in the palace...while they await her true love's kiss.

On the days I see Brandon struggle I wish that we can somehow coordinate this magic. Let him sleep peacefully until the witch is defeated, and let me sleep until he awakes healthy and happy.

I sit here in the hospital and watch him sleep. And once in a while a grin comes to his face. And it makes me smile. Because that is MY Brandon - smiling, happy, making the most of life.

I miss him so much. I just want him better and back home with us. I want to fast-forward to that day. But we must be patient and wait and go through all the steps and he must continue to suffer, and home life with the kids must go on without him ....

I love his sleepy grins and I can't wait for them to come in the waking hours.

Day 16 numbers (Jan 1)

Brandon had a really tough night - vomiting and uncomfortable.
Today he is tired and achy and mostly sleeping.

Numbers today:
Hgb - 87
Platelets - 25
WBC - 0.4

Normal reminder:
Hgb - 140-180
Platelets - 150-400
WBC - 4-11