Thursday, March 11, 2010


On Tuesday, while we were preparing to enjoy our last day in Florida, Brandon's cell phone rang. It was the transplant coordinator...
"We are calling to talk to you about something."
Heart sinks, stomach aches.
"We have identified a back-up donor for you. There is no reason to think you will need it, but just in case, we would like to have that in place."
Heart starts beating again.
"Also, we have reached the donor, and we are ready to move ahead with the transplant on March 29th or 30th."
Heart races, eyes fill with tears.

So this is it. What we have been hoping, wishing and praying for. That day has now been confirmed, the schedule of next steps at the hospital has been set.


For Brandon - a new immune system, potentially a new blood type, a new start, a new beginning to continue his life.

Happiness, fear, anxiety, gratitude, relief, hope, dread ---- just a few emotions that we have been feeling over the last few days.

It's hard to believe the hell that Brandon is about to enter in order to come out healthy on the other side. He is feeling so great now, so normal, that it is incomprehensible that he is willingly entering the nightmare of chemo, radiation, potential rejection, organ failure... Yet he is bravely looking forward to getting there, because the quicker he gets in, the quicker he gets out.

On March 23rd he will enter the hospital for at least a month, and we will be 'apart' again.
But the chapters in our story are moving forward, and we are getting closer and closer to 'happily ever after'.

Fun in the Sun

Last Tuesday we got the amazing news that Brandon has a donor...

So the prince whisked his princess away to a castle in the sun...somewhere over the rainbow.

My amazing husband, in his great wisdom, decided that we needed (and deserved) a few days of relaxation - to be together, rest, and enjoy this time that he is feeling great.

Thankfully (and we are ever so grateful), Brandon's aunt and uncle (Paul and Judy) were over-generous and allowed us the luxury. They flew us to Florida, where we joined them for 4 days in South Beach.

We rested, we sunned, we walked, we people watched, we shopped, we ate, we ate, and we ate.

Most important - we were together, we rested and we were normal.

Thank you so much to Paul and Judy for this amazing gift!

Also a special thank you to 2 other people that allowed this to happen - Arlene and Joe (Brandon's parents) took on the role of nannies for the kids...who had the best time with Bubby and Papa :)

My prince is feeling wonderful! He has gained back all his weight, has a bit of a tan, and the hair is starting to fuzz. He is an amazing man with the best (most positive) attitude I have ever seen. He is my happy place (no matter where we are).